Delaware Valley Chapter of the National Hemophila Foundationnhf

 

Read Health and Human Services Bulletin 12-16-11...

DVC office has Moved!!!!

Our new address is:

14 E. 6th Street, First Floor

Lansdale, PA 19446

Our New Phone # is 215-393-3611

and our new fax # is 215-393-9419.

PLEASE BEGIN TO USE THIS ADDRESS
AND PHONE NUMBER IMMEDIATLEY !

DVC 5K Run and Family Walk
medic alertThe Delaware Valley Chapter of the NHF will reimburse patients for their Medic ID renewal. Call 215-393-3611 for more information. For more information on Medic Alert Foundation go to site.

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hemophilia movie

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If you are a federal, state or School District of Philadelphia employee, you are able to contribute to the DVC through workplace giving. Click this link to find out how: healthcharities.org/pennsylvania The DVC is a member agency of Community Health Charities/PA. YOUR DONATION CAN MAKE A SUBSTANTIAL DIFFERENCE IN THE LIVES OF LOCAL CHILDREN WITH HEMOPHILIA!


TD Bank



nhf

With your support, we can reach our goal to enhance the quality of life for patients affected by hemophilia and related bleeding disorders. We serve the 1700 patients that reside in southeastern Pennsylvania and Delaware.

Thank you for your support!

Your tax deductible donation to us will make a real difference in the lives of people affected by rare bleeding disorders.


Victory for Women


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The Winning Spirit Newsletter is going green!!! If you would like to receive your Newsletter via email just fill in the contact form.


 

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CHAPTER SQUAWK BOX

Voice your opinions, ask the chapter a question, tell us how we are doing, your homecare, your HTC or just send us your comments! WE WANT TO HEAR FROM YOU!

Calendar of Events

February 18 rescheduled from Saturday, October 8, 2011: Plymouth Meeting Speaker Series: Inhibitors & Aging!

more info
February 24 VWD: Issues for Women! Plymouth Meeting more info
February 25 Bowling for Fun! more info
April 14 Fashion Show
April 27-29 VWD Retreat for Women!
May 8 Annual Family Dinner!
June 4 Carlino’s Golf!

NHF DVC BBQJune 9 BBQ Cook-Off for a Cure!

www.bbqcookoff4acure.com

Perk Up Half MarathonAugust 26 Perk Up Half Marathon


Pennsburg, PA, Start: 8:00 AM at the Perkiomen School
download registration, link to website

October 6 The Hemophilia 5K Run and Family Walk! online registration or download registration

For more information on events see Newsletters, FYI or phone the office 215-393-3611.

To view the DVC’s 2011 Annual Report, click here.

Bleeding Disorder Legal Hotline
Call 1-800-520-6154

The Delaware Valley Chapter is pleased to announce the Bleeding Disorder Legal Hotline. This free, confidential phone line is manned by an attorney, Beth Sufian, in Houston, Texas. She has over 17 years of experience helping people with chronic conditions understand the laws intended to protect them regarding health insurance and school/work issues. This Hotline was initiated by the Lone Star Chapter of the National Hemophilia Foundation in 2006. Hotline callers have reported that the information was helpful and would have been difficult to find without the help of this service. The Hotline can provide information on the issues listed below:

  1. Obtaining and maintaining private health insurance.
  2. Obtaining coverage from insurers for medical treatment.
  3. How a small business can obtain health insurance.
  4. Legal rights regarding Medicaid & Medicare.
  5. Applying for Social Security benefits.
  6. Appealing a denial of application for Social Security benefits.
  7. Protection in the workplace from discrimination.
  8. Family Medical Leave/Reasonable Accommodations in the workplace.
  9. Insurance issues related to transitioning young adults.
  10. Legal rights of children with medical conditions in the school setting.

The Bleeding Disorder Legal Hotline is open to people affected with a bleeding disorder and the medical professionals who provide care for them. Quite simply, the Hotline is designed to bridge the gap between the laws and the people who need to know about them. Call 1-800-520-6154 and get informed.

The Hotline is recognized by the National Hemophilia Foundation as a valuable resource to the bleeding disorders community.


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For Email Newsletters you can trust

Text DVC to 22828 from your cell phone to be added to our email list! Keep up to date on what's happening at the Chapter and in the bleeding disorder community by signing up for the DVC monthly E-news!


Gene therapy breakthrough for hemophilia B - CBS News Video


The Philadelphia FoundationThe DVC is highlighed at The Philadelphia Foundation website.

Hemophilia Patient & Program Support Participating Companies

click on the logo below to link to the company

coram


FSN


NCHS


Walgreens-OpitionCare


accredo

caremark