Women’s Retreat

Friday, November 13, 2020- Sunday, November 15, 2020 Chubb Hotel & Conference Center Lafayette Hill, PA The Eastern PA Women’s Retreat is for teens and adults affected by either von Willebrand disease, hemophilia or any other factor deficiency. The program will start with registration and icebreakers on Friday night, November 13. There will be a full …

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Adventures in Learning

Saturday, October 17, 2020Spooky Nook Complex75 Champ Blvd, Manheim, PA 17545 The theme of this year’s program is mental wellness. There will be age appropriate activities at the Warehouse Hotel and then play time inside Spooky Nook Sports. Please stay tuned for updates on this exciting event.

Annual Meeting

The Hilton HotelTuesday, October 13, 2020 4200 City AvenuePhiladelphia, Pennsylvania 5:30 pm Exhibit Hall OpenMeet representatives from pharmaceutical companies and specialty pharmacies to learn about their products and services. 7:00 pm Dinner & Program Remarks By Download Invitation RSVP by Friday, October 2, 2020Please contact Lindsay at or 484-445-4282


Sunday, October 4, 2020 8:00AMElmwood Park Zoo 1661 Harding Blvd, Norristown, PA 19401 Contact Kelly McManus at or 484-445-4282 for any questions.

Family Camp – FILLED

Friday, September 18, 2020-Sunday, September 20, 2020Camp Kweebec157 Game Farm Road Schwenksville, PA 19473 We are going back to Camp Kweebec this September. Nestled on 186 acres in Montgomery County, Camp Kweebec is the perfect site for a weekend family event. The camp has nice, clean cabins that are bright and airy and elevated off …

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Golf Classic

Tuesday, September 15, 2020RiverCrest Golf Club and Preserve 100 Golf Club DrivePhoenixville, PA 19460 Join us and take in the beauty of the RiverCrest Golf Course with native grasses, rock walls, cascading waterfalls and deep ravines challenging players of all skill levels. Enjoy their award-winning food and let their team of professionals deliver a day …

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Back to School Night – CANCELED

Thursday, August 13, 2020 at 6:30PM Dave and Buster’s 500 W Germantown Pike #2195Plymouth Meeting, PA 19462 Prepare to go back to school with educational programs presented by the Hemophilia Federation of America. For the children there will be a goal-setting program and for the caregivers there will be a self-advocacy program. Dinner will be …

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