Mission Statement
Hemophilia Patient and Program Support (HPPS)
is dedicated to providing support to local patients
with bleeding disorders and the programs that serve
them:
-
community outreach and education
-
financial support for patients with hemophilia and related bleeding disorders
-
financial support for programs providing care or research relevant to bleeding disorders
Hemophilia Patient & Program Support will provide services of the highest quality and will secure, to
the extent possible, the continuation of care and service programs for people with bleeding disorders.
What is Hemophilia Patient & Program Support?
Hemophilia Patient and Program Support (HPPS) is
a 501 © (3) charitable and educational organization
created by the Delaware Valley Chapter of the
National Hemophilia Foundation. HPPS was created
to provide funds for community outreach, education
and resources to individuals with hemophilia and
related bleeding disorders residing within the
geographic boundaries served by the Delaware
Valley Chapter. HPPS is dedicated to ensuring that
patients continue to receive the highest quality of
care and services at affordable costs. Working in
collaboration with the Delaware Valley Chapter,
HPPS will provide additional funding to help the
Chapter meet patient and program needs.
Hemophilia Patient & Program Support has been able to financially contribute to the following initiatives
of the Delaware Valley Chapter:
HPPS reviews the compliance of participating companies with the above standards of care. If you choose to obtain clotting
products and supplies from a HPPS participating company, please advise the Delaware Valley Chapter and your Treatment
Center if the services do not meet the above standards.
- Support for Bleeding Disorders Research
- Patient Scholarships
- Provider Scholarships for Meetings and Training
- Support for Family Camp
- Support for Summer Camp
|
- Support for Hemophilia Program Needs
- Support for Patient Needs
- Support for Publications & Information
- Support for Education & Outreach
- Support for Legislative & Advocacy Efforts
|
How does Hemophilia Patient & Program Support benefit you?
Patients and families do not pay dues or fees to receive
periodic information and updates about HPPS. Individuals
on the confidential HPPS mailing list will receive relevant
information periodically, including:
-
The “Winning Spirit” newsletter
-
Information about HPPS participating homecare
companies
-
An annual patient survey to determine your ideas and
preferences
-
Comprehensive scholarship information
-
Help to find the resources you need
-
Information about family events
-
Information about legislative initiatives
-
Information regarding support services
By choosing an Hemophilia Patient & Program Support participating
homecare company you can expect:
-
a full range of services to meet your needs (pharmacy, delivery,
support, financial counseling, etc.);
-
a toll free number and pharmacists, 24 hours a day, with
overnight shipment – regardless of your location;
-
your homecare company will stock adequate inventory to meet
your needs both on a short- and long-term basis;
-
financial help for patient life needs, when need is determined;
-
to be accepted with pre-existing medical conditions;
-
to be provided with expected costs for medications and services
and informed of any changes to those expected costs;
-
to receive help with insurance-related issues;
-
to know, up front, of any company policy regarding
discontinuation of services related to loss of coverage or inability
to pay;
-
to be informed of all product recalls and withdrawals within one
business day;
-
to know your confidentiality will be maintained.
Hemophilia Patient & Program Support reviews the compliance of participating companies with the above standards of care. If you choose to obtain blood clotting products and supplies from a Hemophilia Patient & Program Support participating company, please advise the Delaware Valley Chapter and your treatment center if the services do not meet the above standards.