Mission Statement

Hemophilia Patient and Program Support (HPPS) is dedicated to providing support to local patients with bleeding disorders and the programs that serve them:

community outreach and education
financial support for patients with hemophilia and related bleeding disorders
financial support for programs providing care or research relevant to bleeding disorders

Hemophilia Patient & Program Support will provide services of the highest quality and will secure, to
the extent possible, the continuation of care and service programs for people with bleeding disorders.

What is Hemophilia Patient & Program Support?

Hemophilia Patient and Program Support (HPPS) is a 501 © (3) charitable and educational organization created by the Delaware Valley Chapter of the National Hemophilia Foundation. HPPS was created to provide funds for community outreach, education and resources to individuals with hemophilia and related bleeding disorders residing within the geographic boundaries served by the Delaware Valley Chapter. HPPS is dedicated to ensuring that patients continue to receive the highest quality of care and services at affordable costs. Working in collaboration with the Delaware Valley Chapter, HPPS will provide additional funding to help the Chapter meet patient and program needs.

Hemophilia Patient & Program Support has been able to financially contribute to the following initiatives of the Delaware Valley Chapter:

HPPS reviews the compliance of participating companies with the above standards of care. If you choose to obtain clotting products and supplies from a HPPS participating company, please advise the Delaware Valley Chapter and your Treatment Center if the services do not meet the above standards.

Support for Bleeding Disorders Research
Patient Scholarships
Provider Scholarships for Meetings and Training
Support for Family Camp
Support for Summer Camp

Support for Hemophilia Program Needs
Support for Patient Needs
Support for Publications & Information
Support for Education & Outreach
Support for Legislative & Advocacy Efforts

How does Hemophilia Patient & Program Support benefit you?

Patients and families do not pay dues or fees to receive periodic information and updates about HPPS. Individuals on the confidential HPPS mailing list will receive relevant information periodically, including:

The “Winning Spirit” newsletter
Information about HPPS participating homecare companies
An annual patient survey to determine your ideas and preferences
Comprehensive scholarship information
Help to find the resources you need
Information about family events
Information about legislative initiatives
Information regarding support services

By choosing an Hemophilia Patient & Program Support participating homecare company you can expect:

a full range of services to meet your needs (pharmacy, delivery, support, financial counseling, etc.);
a toll free number and pharmacists, 24 hours a day, with overnight shipment – regardless of your location;
your homecare company will stock adequate inventory to meet your needs both on a short- and long-term basis;
financial help for patient life needs, when need is determined;
to be accepted with pre-existing medical conditions;
to be provided with expected costs for medications and services and informed of any changes to those expected costs;
to receive help with insurance-related issues;
to know, up front, of any company policy regarding discontinuation of services related to loss of coverage or inability to pay;
to be informed of all product recalls and withdrawals within one business day;
to know your confidentiality will be maintained.

Hemophilia Patient & Program Support reviews the compliance of participating companies with the above standards of care. If you choose to obtain blood clotting products and supplies from a Hemophilia Patient & Program Support participating company, please advise the Delaware Valley Chapter and your treatment center if the services do not meet the above standards.