Our Mission

Encouraging and assisting patients with bleeding disorders to receive appropriate medical treatment available in the community. We help in this area through an Outreach Program, by disseminating information about medical care resources and by providing financial assistance to hemophilia treatment centers and to patients and their families.

Providing information and financial assistance to patients affected by bleeding disorders to broaden their educational and social opportunities. We help in this area by providing scholarships and camperships for young people affected by bleeding disorders, and by considering a wide range of other requests from members of the bleeding disorders community.

Facilitating communications among people affected by bleeding disorders, to assist them and their families to help each other through shared experiences and mutual support. We help in this area by sponsoring family-oriented special events and family support groups. We also seek to facilitate communication between the hemophilia community and the community-at-large. We believe that public education, providing a truthful and compassionate picture of hemophilia and the people affected by it, will help to expand their opportunities.

Supporting local medical researchers and care providers dedicated to serving the bleeding disorders community. We help by communicating with government representatives and by facilitating communications between members of the community and their elected officials.

Promoting legislative support for government-sponsored programs beneficial to the community. In this area, we help by communicating with government representatives and by facilitating communications between members of the hemophilia community and elected officials.

Raising funds to provide the financial resources dedicated to helping people in the community. We help in this area through individual contributions and through sponsoring fundraising events. Money raised is used for the programs listed above and other purposes approved by the Board; we seek feedback from the hemophilia treatment centers and our membership to identify the changing needs of the our community.