Spring Speaker Series, Central PA! Two special Saturdays of education for
families in central Pennsylvania.
- March 20: Living Well withHemophilia: Understanding the Challenges Presented by: Jennifer Maahs, NP, Indiana Hemophilia and Thrombosis Center,
Indianapolis, IN.
- March 27: Hepatitis: Current HCV Treatments & Future Developments Presented by: Carolyn Francis, RN, CNP, MS, Lombardi Comprehensive
Cancer Center, Georgetown, Washington, DC.
- March 27: Prophylaxis: Is It Right for Me? Presented by: Joanna Davis, MD,
Hemophilia Treatment Center, Miami, FL and David Ungar, MD, Hemophilia Center
of Central PA.
 Harrisburg Awareness Day, Tuesday, April 20! Families and volunteers from across
the state gathered in Harrisburg to promote the passage of HB 620, The Hemophilia
Standards of Care Act. Our Senate visits provided an opportunity for people affected
by bleeding disorders to restate the importance of HB 620 and why this medical
standard of care is urgently needed in Pennsylvania. More than 150 people
participated!
BBQ Cookoff & Horseshoes for Hemophilia, Saturday,
May 22! These two great events were both held at the
Hatfield American Legion! Twenty grilling clubs competed
and hundreds of supporters came out to enjoy the day to
benefit the programs of the Chapter! Lots of fun for the
whole family!
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Annual Fashion Show and Luncheon, Saturday, April 10! A beautiful day of fashion
and fun at the Drexelbrook in Drexel Hill, PA. This event raised more than $70,000
supporting the mission of the DVC! Thanks to Jennifer Sawyer and Lynn Lindquist,
Co-Chairs and their wonderful committee that made this year’s event so spectacular!
Next year’s date: April 9, 2011!
CEO Program for Teens, Saturday, April 17! Held at the Radisson Valley Forge Hotel,
this interactive leadership program helped teens look at future careers, education and
opportunities in a totally new way. This national program geared to adolescents, was
developed by the Indiana Hemophilia and Thrombosis Center and was sponsored by
Baxter.
VWD Women’s Retreat on the Hill, April 23-25! This annual spring retreat
provided an educational opportunity for women in families affected by VWD.
A spectacular program of education and networking provided by local experts
from the hemophilia treatment centers. This event was sponsored by a grant
from CSL Behring. See you next spring!
Carlino’s Golfing for a Cure, Monday, June 7th! A
wonderful day of golf, friends and fantastic food,
sponsored by Carlino’s Foods in Ardmore, PA. This event
was held at Edgemont Country Club in Edgemont, PA. A
big, big “thank you” to Pat and Laura Carlino and their
employees and Kathy and John DiMichele for being so
generous to the DVC and its commitment to supporting
research!!!
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Annual Family Dinner, Tuesday May 4! Truly a special, special night. We
honored three utstanding local hemophilia program medical directors, Dr. Blatt
(Christiana), Dr. Catherine Manno (CHOP) and Dr. Barbara Konkle (UPENN) and
heard “Life Perspectives” from members of our community. Special legislative
awards were presented to Representatives Lawrence Curry (D-154) and Richard
Grucela (D-137) for their leadership which led to the passage of HB 620 in the PA
House of Representatives on August 9, 2009. A night to remember!
Broad Street Re-Run, Saturday, May 15! This second annual 5 mile run, ½ mile kids’
run and a 1 mile family walk was held in Lansdale, PA on Saturday, May 15th! What
a spectacular day with more than 850 runners and walkers, music, food, awards and
fun! Super Mario and Luigi from Nintendo were there as well as Senator Bob Mensch
(supporter of HB 620) and Dan Reavy from the Verizon Foundation and Mayor Andy
Szeckley!
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Chapter Happenings
