Saturday, February 18, 2012:Understanding Inhibitors (childcare available)
Presented by Regina Butler, RN, Children’s Hospital of Philadelphia Hemophilia Program
Saturday, February 18, 2012:Aging in Hemophilia (childcare available)
Presented by Patrick Fogarty, MD, Penn Comprehensive Hemophilia and Thrombosis Program, Hospital of the University of Pennsylvania
February 24, 2012: VWD: Women with Bleeding Disorders (no childcare available) Presented by Judy Kauffman, RN, MS, CPNP, Kansas City Missouri Regional Hemophilia Center
Patient Services Incorporated to Operate the ACCESS Program
The Delaware Valley Chapter has partnered with Capital One to launch our newest fundraising program and it will help us earn money doing what you do every day!! Just use our custom credit card and 1% of purchases made with the card will be donated to our organization. Plus, we’ll get a $25 bonus donation when you make your first purchase. The card comes with a competitive rate and there is no annual fee, so sharing your passion—and your support – is easy and automatic. Complete information is available at www.hemophiliasupport.org. Apply today!
Bleeding Disorder Legal Hotline
The Delaware Valley Chapter is pleased to announce the Bleeding Disorder Legal Hotline. This free, confidential phone line is manned by an attorney, Beth Sufian, in Houston, Texas. She has over 17 years of experience helping people with chronic conditions understand the laws intended to protect them regarding health insurance and school/work issues. This Hotline was initiated by the Lone Star Chapter of the National Hemophilia Foundation in 2006. Hotline callers have reported that the information was helpful and would have been difficult to find without the help of this service. The Hotline can provide information on the issues listed below:
Obtaining and maintaining private health insurance.
Obtaining coverage from insurers for medical treatment.
How a small business can obtain health insurance.
Legal rights regarding Medicaid & Medicare.
Applying for Social Security benefits.
Appealing a denial of application for Social Security benefits.
Protection in the workplace from discrimination.
Family Medical Leave/Reasonable Accommodations in the workplace.
Insurance issues related to transitioning young adults.
Legal rights of children with medical conditions in the school setting.
The Bleeding Disorder Legal Hotline is open to people affected with a bleeding disorder and the medical professionals who provide care for them. Quite simply, the Hotline is designed to bridge the gap between the laws and the people who need to know about them. Call 1-800-520-6154 and get informed.
The Hotline is recognized by the National Hemophilia Foundation as a valuable resource to the bleeding disorders community.
The Delaware Valley Chapter of the NHF will reimburse patients for their Medic ID renewal. Call 215-393-3611 for more information. For more information on Medic Alert Foundation go to site.
Factor Assistance Programs Offered by Manufacturers
Manufacturers of clotting factor concentrates can possibly provide assistance to you in the event of a lapse or loss of health insurance. The following resources can help connect you with a patient assistance program:
HANDI, National Hemophilia Foundation’s information resource center: 800.42.HANDI or handi@hemophilia.org
Advocating for Chronic Conditions, Entitlements and Social Services (ACCESS): 888.700.7010
Contact the manufacturers directly to learn about program criteria, eligibility guidelines and other details or link their websites from www.hemophiliasupport.org
Pennsylvania Bleeding Disorders Premium Assistance Program
Program Objective
The Pennsylvania Bleeding Disorders Premium Assistance Program was established in 2009 to provide assistance to residents of the Commonwealth with Hemophilia and von Willebrand Disease. This program offers financial assistance to subsidize private health insurance premiums and insurance case management services. This Program May Help
Patients in need of financial assistance to cover health insurance premium costs (even premiums deducted from payroll).
Those who need assistance identifying individual health insurance options to make informed choices.
Patients that have either lost or are at risk of losing Medicaid benefits due to age.
Patients who are terminated from their employment and qualify for COBRA benefits.
Patients who have hit the lifetime maximum on their policy.
Referral Process
This program will receive referrals from The Delaware Valley Chapter of the National Hemophilia Foundation, the Western PA Chapter of the National Hemophilia Foundation and other community partners like Hemophilia Treatment Centers, State Agencies, Patient Organizations, Home Care Companies, etc. Patients can also contact PSI directly. If approved, patients will transition into private insurance or continue with their current private insurance policy and PSI will subsidize the premium cost. The amount of financial assistance offered by PSI to approved clients is determined on a sliding scale* based on a client’s total household income, dependants, the cost of living for the state of residence, and pre-determined extenuating circumstances.
Program eligibility will be determined by the following guidelines:
Diagnosis: Hemophilia/von Willebrand Disease
Hemophilia Severity: Moderate or Severe
Von Willebrand: Actively treating with a factor product
Resident of Pennsylvania
Household Income at or below 200% of the Federal Poverty Level (FPL%)
This pilot program will assist as many patients as funding permits.
Per the PSI Choice Policy, the patient will be responsible for the choice of product, provider, vendor, and prophylactic treatment.
Approved patients:
Will be required to provide updated financial documentation for review on an annual basis.
May have a cost share of 5% to 7% of their health insurance premium.
May be able to utilize up to $11,000 of assistance annually.
How can PSI help me?
I already have a private insurance policy. PSI may be able to provide financial assistance with your insurance premium.
I don’t have a private insurance policy. PSI can provide resources for private insurance policies offered in your state that might work for you. Once you select and enroll in a private plan, PSI may be able to provide financial assistance with your insurance premium.
I and/or my child are currently enrolled in Medicaid or I will soon age out of Medicaid eligibility. PSI can provide resources for private insurance policies offered in your state that might work for you. Once you select and enroll in a private plan, PSI may be able to provide financial assistance with your insurance premium.
Contact PSI at 1.800.366.7741 to request an application.
A Client Service Representative will guide you through the enrollment process.
Program Objective