| Benefits | List of Local Treatment Centers | Comprehensive Care |

The Benefits of being at a Hemophilia Treatment Center

Although it is possible to receive treatment for bleeding disorders from providers outside the Hemophilia Treatment Centers (HTCs), the advantages for being registered at an HTC are many. Data collection on management strategies and factor products is done through the HTC network. Product recalls and changes in management strategies are brought to the attention of the Hemophilia Treatment Centers by experts from around the world. Because bleeding disorders are rare, providers outside the HTC may have little experience treating someone with a bleeding disorder. Because HTCs are often closely linked with research centers, patients have the advantage of being treated by providers who know about recent developments in hemophilia and other bleeding disorders and may actually be involved in that research. By being registered at an HTC, patients may be eligible to participate in research studies that can benefit patients worldwide. HPPS encourages all patients with bleeding disorders to register at a Hemophilia Treatment Center.

Comprehensive Care

Comprehensive Care is a coordinated approach to healthcare delivery. It is based on the idea that to treat an illness effectively, the whole person must be considered. That means focusing not only on the disease itself, but on the emotional, social, educational, financial, and workplace impact of the disease as well. In the bleeding disorders community, comprehensive care is available at hemophilia treatment centers (HTCs).

In 1973, the National Hemophilia Foundation launched a campaign that led to the establishment of a federally funded network of HTCs throughout the country. These centers offer care by specially trained teams including doctors, nurses, orthopedic surgeons, physical therapists, social workers, dentists, HIV specialists, risk reduction counselors, and mental health professionals. The more than 140 HTCs throughout the country serve patients in almost all states. Beyond improving the quality of life for people with bleeding disorders, HTCs can assist patients with issues related to insurance and the high cost of treatment. Some HTCs participate in the Public Health Service drug pricing program created in 1992. Savings incurred utilizing this program allow patients with bleeding disorders to obtain factor replacement products at reduced prices and provide financial support for HTCs.

Hemophilia Treatment Centers in the Delaware Valley